Providing hope for those impacted by EB
We aim to spread awareness and bring support to those living with this challenging and painful condition. Dedicated to Tyler, who we lost in 1997.
Butterfly Children
Children with EB are called this because their skin can is as fragile as a butterfly wing.
Get Informed
EB is a rare disease, meaning awareness and funding for research and assistance are low.
Get Involved
Through volunteering, donating, fundraising, and more, you can help make a difference.
Fight Back
Organizations like the EB Research Partnership aim to treat and eventually cure EB.
About Epidermolysis Bullosa
A rare genetic skin disorder without a cure
Epidermolysis Bullosa is a rare genetic skin disorder that causes extremely fragile skin and recurrent blistering. While the race is on to find a cure, hundreds of children across the country continue to suffer from this deadly condition and need our help.
200+
New Cases Per Year
Learn More
Get Involved
Epidermolysis Bullosa is a rare condition and does not receive the research funding necessary to find a cure. With your help, we can spread the word and change that.
Learn More About EB
Learn more about Epidermolysis Bollosa and how this condition impacts children.
500k+
People Affected Globally
300+
Mutations
200+/yr
New Butterfly Children
0
Successfully Cured
Who Are We?
We Are Tyler's EB Awareness
We are Tyler’s EB Awareness – A website started after the passing of Tyler from Epidermolysis Bullosa in 1997 with a goal of spreading awareness about EB.